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Lipedema Resources

Posted on 27 January 2015

Fat Disorders Research Society

FDRS is dedicated to improving the quality of life for all people affected by adipose tissue disorders through research, education, advocacy and collaboration.

 

Talk Lipoedema

A UK based organization active across the UK. They provide benefit to sufferers of lipoedema and their carers through participating in various projects and increasing awareness of the disease.

 

Big Leg Woman

A blog that educates and informs people about lipedema and related conditions.

 

Lipedema Simplified

A portal to information about a relatively common fat disorder that is often mistaken for simple obesity.

 

Cure Lipedema

A portal to information and support for lipedema. 

 

Lipedema Education

A Facebook page about lipedema educational support with information about food, supplements, compression and fitness.

 

 Liposuction For Lipedema

A Facebook page that provides information and support for those considering liposuction for lipedema.

 

Lipese

Lipese presents theories and new developments in research and reports on trial and error in managing lipedema. 

 

 Lymphedema People

A web community that includes a support forum, a wiki and articles about lymphedema.

 

Big Fat Legs

A website that features supportive topics about lipedema.

 

Lipoedema Ladies

A web community that features support and information about lipoedema.

 

 Lipoedema UK

An informational hub and charity to raise lipoedema awareness within the UK medical community.

 

NHS

An UK based health and wellness website.

 

Lipoedema Australian Support Society (LASS)

An Australian based lipoedema education and support website.

 

 Flinders Medical Center: Lymphoedema Research Unit

The Lymphoedema Research Unit features a holistic approach to assessing and managing lymphoedemas and other oedemas.

 

 National Lymphedema Network

A non-profit organization proving education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the risk reduction and management of primary and secondary lymphedema.

 

Lymphology Association of North America (LANA)

An organization that promotes standards for management of individuals with Lymphedema and or related disorders, to establish and maintain certification for medical professionals who provide such services and to promote the awareness and science of lymphology.

 

American Lymphedema Framework Project (ALFP)

An organization who's mission is to define the best practices of lymphedema management and developing a minimum data set to improve lymphedema outcomes.

 

Lymphatic Research and Education Network

An organization who's mission is to fight lymphatic disease and lymphedema through education, research and advocacy.

 

International Lymphoedema Framework

An organization who's objective is to improve the management of lymphoedema and related disorders worldwide.

 

LymphNotes

An online information resource for those having, or at risk of developing lymphedema.

 

StepUp–SpeakOut (SU-SO)

Resources, support and advocacy for women and men with breast cancer-related lymphedema.

 

 Healthy-Steps

Offering wellness programs for everyone, from young adults to seniors, regardless of health, age or ability level, the Healthy-Steps program improves overall wellness, range-of-motion, balance, strength and endurance, as well as emotional well-being and self-image.

 

International Society of Lymphology (ISL)

An international society to coordinate and advance the knowledge of lymphology. 

 

Born2lbFat

A blog about lipedema, lymphedema and weight loss surgery.

 

Lipedema Fitness

An inspirational blog about lipedema fitness and living life with lipedema.

 

Mishfit

An empowering website for women.

 

Lipedema

A personal blog about research, questions, findings and experiences in the hopes of bringing more light to lipedema.

 

Leigh's Lipedema Journey

A Facebook page about a woman's journey through stage 3 lipedema.

 

Stichting Nederlandse Lipoedeemdag

A Netherlands based blog about lipedema.

 

Lymphedema

Author and lymphedema specialist Joachim Zuther's blog features articles and resources for finding therapists.

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